This resource guide includes a list of organizations and web sites that health care professionals have found helpful in caring for their clients and families with multiple sclerosis. The consumer sites are a useful information resource for the health care professional to recommend to their clients. This list is not exhaustive. Organizations will be added as they are submitted and reviewed by the CMSC Website Editorial Review Board.Current Categories:
American Academy of Neurology (AAN)
Association website for neurologists and neuroscience professionals. This site offers medical economic updates, clinical practice tools and guidelines, research resources, CME, extensive education and training programs including mentorship, clerkship, fellowship and resident programs. Several publications are listed as well as the association's official journal Neurology which is available with a subscription.
International Foundation for Functional Gastrointestinal Disorders
The International Foundation for Functional Gastrointestinal Disorders (IFFGD) is a nonprofit education and research organization that addresses issues surrounding digestive disorders. Multiple sclerosis patients have often complained of bowel problems management. To address this need, IFFGD has published a brochure titled,
Bowel Problems Associated with Neurologic Disease. In addition, IFFGD has a toll-free number that connects to staff members knowledgeable about gastrointestinal conditions and offers a library of publications that address constipation, bowel incontinence, and other related symptoms.
Medlineplus: Health Information from the National Library of Medicine
A consumer resource that provides access to extensive information about specific diseases, conditions and drugs, including spellings and definitions of medical terms, generic and brand name drug information, locations and credentials of doctors, dentists and hospitals.
National Center for Complementary and Alternative Medicine
The National Center for Complementary and Alternative Medicine (NCCAM) at the National Institutes of Health (NIH) is dedicated to exploring complementary and alternative healing practices in the context of rigorous science; training CAM researchers; and disseminating authoritative information. Among other things, this site offers fact sheets, consensus statements, CAM databases, research and a clearinghouse of CAM information, a clinical trial section and links.
National Library of Medicine (NLM)
A resource for healthcare providers that includes references and abstracts from 4300 biomedical journals, information for patients about clinical research studies, directory of health organizations and catalog of books, journals, and audiovisuals in the NLM collection.
National Library of Medicine (NLM) Gateway
The NLM Gateway is a multiple retrieval system, which allows for simultaneous searching in multiple databases.
Neurosciences on the Internet
A searchable and browsable index of neuroscience resources available on the Internet: Neurobiology, neurology, neurosurgery, psychiatry, psychology, cognitive science sites and information on human neurological diseases.
Rocky Mountain MS Center Complementary Care
The Rocky Mountain MS Center in Colorado provides accurate, unbiased reviews on complementary medicine for MS. There is a $20 annual membership fee.
The Whole Brain Atlas
A wonderful graphic site with good anatomical models to aid in patient and professional education.
Agape/Baylor Community Care Program
A resource to help health care professionals better understand Hispanic patients, families and communities. Contains thoughtful, referenced articles about culture, communication, religious and health beliefs. The Agape clinic, is a cooperative community ministry and health program. Staffed by volunteer MD's nurses, social workers, pharmacists, and other health, spiritual, and social service organizations. The site offers bilingual resources and links to translation sites.
Latin America Committee for Treatment and Research in Multiple Sclerosis (LACTRIMS)
LACTRIMS is a newly formed organization which was organized recently by neurologists representing clinical services in multiple sclerosis throughout Latin America (Mexico, Central America, Cuba, and South America) as well as the southern part of the United States. LACTRIMS is broadening its focus in the new millennium to include an MS team of health care professionals.
Multicultural Health Clearinghouse of the University of Illinois
This site provides helpful health and wellness information and links to other health resources.
Office of Minority Health
This is the U.S. Department of Health and Human Services Office of Minority Health. The mission of OMH is to improve the health of racial and ethnic populations through the development of effective health policies and programs that help to eliminate disparities in health. This site offers information on conference links, publications, data and statistics, health links, an extensive listing of government resources and an employment announcement section.
Rehabilitation in Multiple Sclerosis (RIMS)
RIMS is a network of MS Centers in Europe that are involved in clinical care and rehabilitation in multiple sclerosis. RIMS focuses on an interdisciplinary, multidisciplinary team approach to MS care.
Translate with Babelfish
This site will translate English to a number of different languages.
American Association of Neuroscience Nurses (AANN)
This is the certifying organization for neuroscience nurses. The website offers a newsletter, annual meeting information and certification information. This organization develops core curriculum and standards of practice for neuroscience nursing.
American Nurses Association (ANA)
The website of the ANA organization that represents the nations 2.6 million registered nurses through its state organizations. The site fosters high standards of nursing practice, promotes welfare of nurses and legislative lobbying of health care issues. It is a full-service site with many offerings including a listing of useful websites.
Association of Rehabilitation Nurses (ARN)
The ARN is the certifying organization for rehabilitation nurses. The website offers a variety of online continuing education articles, conference information, a journal, certification information and practice test, and opportunities for networking.
International Organization of Multiple Sclerosis Nurses (IOMSN)
The first and only international organization focused solely on the needs and goals of professional nurses, anywhere in the world, who care for people with multiple sclerosis. Mentoring, educating, networking, and sharing, the IOMSN supports nurses in their continuing effort to offer hope.
Academy of Nutrition and Dietetics
This is the official website of the largest organization of food and nutrition professionals. The site includes resources for health professionals and consumers: a nutrition tip of the day, nutrition fact sheets, how to find a nutrition professional in your area and a catalog of educational materials for purchase.
Food Medication Interactions
This site offers two comprehensive, well-documented handbooks of interest to health care professionals: the Food Medication Interactions Handbook by Zaneta F. Pronsky, MS, RD, LDN, FADA and the Herb-Drug Interactions Handbook by Sharon Herr, RD, CDN.
This website, operated by Dr. Stephen Barrett, for the nonprofit organization which he began in 1969 as the Lehigh Valley Committee Against Health Fraud, provides information about health care related frauds, hoaxes, myths and fallacies. It critiques alternative medicines, dubious products, and questionable advertisements. Information is well documented. Much of the information included here is not available anywhere else. Information is available in English, Spanish, French, and Portuguese.
United States Department of Agriculture Food and Nutrition Information Center
This website provides a wealth of information on general nutrition for professionals and consumers.
ABLEDATA is a federally funded project whose primary mission is to provide information on assistive technology and rehabilitation equipment available from domestic and international sources to consumers, organizations, professionals, and caregivers within the United States. The ABLEDATA database contains information on more than 30,000 assistive technology products (over 20,000 of which are currently available), from white canes to voice output. They do not produce, distribute or sell any of the products listed on the database, but they will provide you with information on how to contact manufacturers or distributors of these products. They are a national assistive technology information exchange.
American Occupational Therapy Association (AOTA)
Association for Driver Rehabilitation Specialists (ADED)
The Association for Driver Rehabilitation Specialists was established as a nonprofit association in 1977 to support professionals working in the field of driver education / driver training and transportation equipment modifications for people with disabilities through education and information dissemination. To locate a driver rehabilitation specialist in a specific area, visit their Membership Directory.
Automotive Mobility Solutions: National Mobility Equipment Dealers Association (NMEDA)
NMEDA is a non-profit trade association of mobility equipment dealers that provide vehicle modifications and equipment installation, manufacturers of equipment and other services, driver rehabilitation specialists, and other professionals dedicated to broadening the opportunities for people with disabilities to drive or be transported in vehicles modified with mobility equipment.
Canadian Association of Occupational Therapists (CAOT)
The Center for Universal Design
The Center for Universal Design is a national research, information, and technical assistance center that evaluates, develops, and promotes universal design in housing, public and commercial facilities, and related products.
Closing the Gap, Inc.
Resource for computer technology in special education and rehabilitation. Through their newsletter, resource directory, annual conferences and web site, they provide practical up-to-date information on assistive technology products, procedures and best practices.
The Home Wheelchair Ramp Project
MCIL (Metropolitan Center for Independent Living)
How to Build Wheelchair Ramps for Homes is a manual of design and construction for modular wheelchair ramps. This manual includes information about ramps and long-tread low-riser steps to improve safe home accessibility.
Rehabilitation Engineering & Assistive Technology Society of North America (RESNA)
RESNA is a resource for technology-related services, information, or referrals. Many resources and links to other sites provided.
Trace Research & Development Center
The Trace Center is currently working on ways to make standard information technologies and telecommunications systems more accessible and usable by people with disabilities.
Provides a support system for caregivers (professional or family member) through tips, real life stories, and message boards.
Computer Literate Advocates for Multiple Sclerosis (CLAMS)
This website strives to bring those with MS out of isolation and into computer communications for support, companionship and information with others sharing the disease. CLAMS is comprised of people who are provisionally diagnosed or diagnosed with Multiple Sclerosis (MS). This site can be used as a resource for finding healthcare providers in MS who have been recommended by people with MS. Also has good links to other sites.
ElderWeb is an ongoing learning activity born out of the expressed needs of older adults trying to cope with the expanding world of technology. It has links to long term care information, as well as an expanding library of articles and reports, news, and events. Includes information on elder care and links to legal, financial, medical and housing issues. The site is accessible to handicapped-enabled and text-only browsers; text size can be increased or decreased.
Health Insurance Marketplace
This site is designed to facilitate understanding of the Affordable Care Act and the Exchange Marketplace available in most states in the US.
Sponsored by the Department of Health and Human Services, Healthfinder is a consumer resource that provides access to health information pertaining to prevention and self-care, latest government health news, Medicare, and other health topics of interest across all ages. This website provides links to other health-related websites.
Chat site developed by a person with MS; it is a popular way to communicate with others who have MS via the message boards. Sponsored by Teva Canada Innovation, but site is unbiased.
Multiple Sclerosis Association of America
The Multiple Sclerosis Association of America (MSAA) is a national nonprofit organization dedicated to enhancing the quality of life for those affected by multiple sclerosis. MSAA provides ongoing support and direct services to individuals with MS and their families.
Multiple Sclerosis Foundation
Great source of basic information about MS. Website has an interactive, multimedia MS library and online forum. Users can also subscribe to MSFocus, a quarterly magazine, Support Group News, a bimonthly publication, and MSFYi, an Internet newsletter.
Multiple Sclerosis International Federation (MSIF)
The Federation seeks to work in worldwide partnership with member MS societies and the international research community to eliminate MS and its consequences and to speak out globally on behalf of those affected by MS. Patients can access MS symptoms, definitions and publications; professional publications are accessible at this site.
Multiple Sclerosis Society of Canada
Information about the disease, progress in MS research, available services, fund-raising opportunities and quick access to the MS Society.
Multiple Sclerosis Society of UK
The MS Society is the UK's largest advocacy group for people with Multiple Sclerosis (MS). The Society is the main source of reliable information about MS and the leading UK funder of MS research.
Multiple Sclerosis Trust
The MS Trust is a leading independent UK organization for people with multiple sclerosis, their families and friends, and for all UK-based health professionals.
National Multiple Sclerosis Society
An outstanding resource for individuals with MS and their families that provides information pertaining to living with MS, MS treatment, scientific progress, publications and its organization structure and functions.
Nursing Home Abuse and Neglect
Consumer site explains federal and state law and steps in filing a complaint against a nursing home.
Patient Assistance Now
Patient Assistance Now represents part of Novartis Pharmaceuticals Corporation’s ongoing commitment to patients who may need help in getting the medicines they need and information to manage their health. This online resource provides easy access to information about prescription drugs and programs than may provide assistance with the cost of medications. It also includes important information to help people better understand specific diseases and conditions.
What is Multiple Sclerosis?
The Multiple Sclerosis Web site offers comprehensive information about the understanding of the disease, treatment options, and daily management strategies. It also provides patients and caregivers with evidence-based, scientific information about Multiple Sclerosis. Also, readers have the ability to
Ask the Expert any questions they may have for additional information that is not listed on the site.
Informational site on herbal products.
Centers for Disease Control and Prevention
Public health guidelines, vaccine and travel information and CDC publications.
CDC Vaccines and Immunizations
Current guidelines provided regarding vaccines.
Center for Food Safety and Applied Nutrition
Site providing adverse drug reaction information for herbal products and supplements.
Consumer health information on the news.
Drug Digest from Express Scripts
Provides drug and disease information for consumers.
Food and Drug Administration
Drug information, including approvals, shortages, news, etc.
Government-sponsored consumer resource on prevention and self-care, the latest government health news, Medicare and other health topics of interest across all ages.
Immunization Action Coalition
Educational resources for health care professionals and patients.
Provides information on more than 8,000 prescription and OTC medications, as well as health information.
Source for other links on herbal products.
National Council on Patient Information and Education (NCPIE)
Links to timely guidelines, tips and resources to help patients use their medications safely and appropriately.
National Foundation for Infectious Diseases (NFID) – National Coalition for Adult Immunization (NCAI)
Resource on various adult immunization topics.
National Institutes of Health
Information on disease states, research and federal health programs.
National Institutes of Health National Center for Complementary and Alternative Medicine
National Library of Medicine
A searchable listing of abstracts of medical literature.
This is a non-profit site which provides information on health related frauds, myths and fads related to products, health advice and advertising.
Provides user-friendly, easy-to-read information on more than 700 drug products.
U.S. Department of Health and Human Services
Information on prescription and herbal medications, drug news and product recalls, and links to health information.
Psychology & Neuropsychology
American Psychological Association Division 22: Rehabilitation Psychology
Division 22: Rehabilitation Psychology seeks to bring together all APA members interested in the psychological aspects of disability and rehabilitation, to educate the public on issues related to disability and rehabilitation, and to develop high standards and practices for professional psychologists who work in this field. Members may be involved in clinical service, research, teaching, or administration. The Division publishes a quarterly journal, Rehabilitation Psychology, and a quarterly newsletter, Rehabilitation Psychology News.
American Psychological Association Division 40: Clinical Neuropsychology
Division 40 of the American Psychological Association, the Division of Clinical Neuropsychology, is a scientific and professional organization of psychologists interested in the study of brain-behavior relationships, and the clinical application of that knowledge to human problems. Division 40 promotes the use of scientific research to develop its knowledge base and clinical techniques. It is active in the development and promotion of quality standards of professional training and practice.
International Neuropsychological Society
The International Neuropsychological Society is a multi-disciplinary nonprofit organization dedicated to promoting research, service and education in neuropsychology, and to enhancing communication among the scientific disciplines, which contribute to the understanding of brain-behavior relationships.
National Academy of Neuropsychology
The National Academy of Neuropsychology is a professional society that includes clinicians, scientist/practitioners, and researchers interested in neuropsychology.
General neuropsychological information and neuropsychology search engine.
Speech Language Pathology
American Speech-Language-Hearing Association
Professional association for speech-language pathologists and audiologists; advocacy organization for people with communications disorders.
Dysphagia Resource Center
Broad based resources for swallowing and swallowing disorders.